Author Topic: Myhealth opt out Oct 15th deadline for automatic registration.  (Read 3725 times)

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Offline JusyApples

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Re: Myhealth opt out Oct 15th deadline for automatic registration.
« Reply #25 on: July 20, 2018, 01:58:30 PM »
It’s not the data being stolen that’s the issue. It’s the data being compiled and sold that’s the problem.

If I can give a personal example.
As a 2nd year apprentice many moons ago, there was a week when the weather was perfect for fishing on the reef. So I happened to develop a bit of a sore back for a few days and couldn’t make it into work.
On my return the company put me on lite duties and I had to attend a couple of sessions of Physio to get fit for work again.

Today I’m sure there’s a dusty old manila folder shoved down the back of a filing cabinet in a back room of a little country hospital with my injury report in it and no employer ever since that day has any knowledge of my “pre-existing back injury”.

Now if an apprentice working today decides to pull the same youthful prank they are completely screwed.
That “pre-existing back injury” will haunt them for life.

All of the other Cambridge Analytica companies out their today are primed and ready to start data mining their way through all of our medical records and willing to selling this data to anyone that wants to purchase it.....

Have a look at legislation My Health Records Act 2012, no one can sell the info.
Your health records are private. No one can access it, even police can't get it medical records from victims without signed permission.
Doctors are already using online medical record.
https://www.myhealthrecord.gov.au/sites/g/files/net4206/f/hd208_cyberprivacy_tips_20180410.pdf?v=1523931275
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Offline Pete79

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Re: Myhealth opt out Oct 15th deadline for automatic registration.
« Reply #26 on: July 20, 2018, 02:17:10 PM »
Have a look at legislation My Health Records Act 2012, no one can sell the info.
Your health records are private. No one can access it, even police can't get it medical records from victims without signed permission.
Doctors are already using online medical record.
https://www.myhealthrecord.gov.au/sites/g/files/net4206/f/hd208_cyberprivacy_tips_20180410.pdf?v=1523931275

That's a nice glossy government document with half of the real details missing.
Our data is most definitely up for sale, just need to word your submission correctly and it's all yours...

Bold bits added by me;

"From as early as 2020 the medical information of Australians will made available to third parties, including data that identifies patients, unless they take steps to stop it being shared, according to the federal government’s new secondary data use rules.

Releasing the Framework to guide the secondary use of data in My Health Record system, Health Minister Greg Hunt confirmed in a statement that individuals’ highly confidential information will be made available for public health and research purposes unless they opt-out.

The framework, which was developed in collaboration with consumers, clinicians, medical researchers, industry experts, privacy advocates and the Office of the Australian Information Commissioner, also aims to ensure people’s privacy and the security of the data, the minister said.

“The My Health Record system will help save and protect lives and is supported by healthcare consumers, doctors and the medical community across Australia. It is subject to some of the strongest legislation in the world to prevent unauthorised use,” Hunt said.

All Australians will have a My Health Record in 2018 unless they opt out of the system during a three-month period from 16 July to 15 October 2018. Those who are handed a MHR will automatically be signed up for the secondary use of their data and can opt out by clicking on a ‘Withdraw Participation’ button.

If they don’t opt out, according to the framework, consumers can limit access as “any data or document that they have classified (using consumer controls) as being ‘Restricted Access’ or that they have removed will not be retrieved for secondary use purposes”. Data in a cancelled record will not be accessible.

Information could start flowing out of the MHR to third parties in 2020.

The MHR online repository is designed to collect and share the health information of Australians – such as GP health summaries, hospital discharge reports, imaging and pathology results, and details of drugs prescribed – between healthcare providers to support patient care.

The secondary use of the data is far more controversial, with a number of submissions to the public consultation process for the framework calling for the system to be opt-in.

In addition to its use in medical research, the minister said the information will allow improved forecasting of health trends, and inform planning and policy development.

He said the data “cannot be used for commercial and non-health-related purposes, including direct marketing to consumers, insurance assessments, and eligibility for welfare benefits”. Insurance companies won’t be able to access the information, according to the new rules.

However, the framework says companies can apply to have the data door opened to them if they can show it is in the public interest.

“There is a need to balance support for the use of the data for beneficial research and public health purposes against the policy of not using the data for solely commercial purposes,” it says.

“Commercial organisations may propose uses that could be approved so long as it can be demonstrated that the use is consistent with ‘research and public health purposes’ and is likely to generate public health benefits and/or be in the public interest.”

The framework also says identified data is up for grabs.


“For applications involving identified data, subject to the provisions of the My Health Records Act 2012 and the Privacy Act 1988, the Board will require ethics approval to be obtained by the AIHW Ethics Committee before data can be accessed or released.”

For those applying for access to de-identified data, ethics approval may need to be obtained. The risk of the data being re-identified and the potential harm or embarrassment it can cause to individuals is acknowledged within the framework, which says those considerations need to be balanced with the greater good.

“There is a need to ensure that individuals’ privacy is protected and that de-identification methods render the risk of re-identification as very low (having regard to the relevant release context). There is also a need to balance maximising the benefits of using the data with the risk of breaching an individual’s privacy or causing harm to individuals.”

The Board can permit the linkage of MHR system data with other data sources if the project is deemed to be of public benefit.

Hunt said “the protection of patient information and privacy is critical and we have strong safeguards in place to protect health data in Australia”, including the risk of jail for those found “doing the wrong thing with patient information”.

Any Australian-based entity – other than insurance companies – can apply to access the data. International organisations can apply if they are working in collaboration with Australian applicants on a proposed project, the data usage will generate public health benefits for Australians, and the MHR data will be stored in a facility within Australia.

The Australian Institute of Health and Welfare will be the data custodian for the purposes of the framework, and a Governance Board comprised of representatives from the AIHW, the Australian Digital Health Agency and independent experts in population health, research, health services delivery, technology, data science, data governance and privacy, and consumer advocacy will be appointed. The ADHA, as the system operator, will be responsible for preparing and providing the data."




As per my earlier post, I give insurance companies months before they've got access to everything (through 3rd parties and the guise of medical research).
And employers will soon enough have no problems working with Cambridge Analytica style companies that have applied for access for "the greater good" and purchase the medical records of potential employees.

Once again, the data doesn't need to be stolen when it is openly offered up for collection......
« Last Edit: July 20, 2018, 02:20:54 PM by Pete79 »

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Re: Myhealth opt out Oct 15th deadline for automatic registration.
« Reply #27 on: July 20, 2018, 02:26:17 PM »
Quote from: Pete79
That's a nice glossy government document with half of the real details missing

Only thing you need to remember is they will go with the cheapest, least recommended solution that will be obsolete by the time its implemented and bugs ironed out so they start again.

And how do you tell when a politician is lying?
His mouth is open.
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Offline Pete79

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Re: Myhealth opt out Oct 15th deadline for automatic registration.
« Reply #28 on: July 20, 2018, 02:28:50 PM »
Just realized I didn't copy the last line of that article.
Not much more than this needs to be said really...

"The framework will be reviewed two years after the initial dataset is released, with the possibility that wider uses of the information will be identified, including the provision of MHR data to insurance agencies".
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Offline JusyApples

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Re: Myhealth opt out Oct 15th deadline for automatic registration.
« Reply #29 on: July 20, 2018, 02:58:52 PM »
Just realized I didn't copy the last line of that article.
Not much more than this needs to be said really...

"The framework will be reviewed two years after the initial dataset is released, with the possibility that wider uses of the information will be identified, including the provision of MHR data to insurance agencies".
But you still didn't read legislation did you ???
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Offline Pete79

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Re: Myhealth opt out Oct 15th deadline for automatic registration.
« Reply #30 on: July 20, 2018, 03:14:32 PM »
But you still didn't read legislation did you ???
Nope.
Just opting out was much quicker and easier. ;)

I’m guessing the myhealth legislation has lots of rules and laws just like the anti discrimination, human rights, environmental protection or even the latest “Banking Executive Accountability Regime” legislation has. And all of those are going swimmingly these days aren’t they.... ;D

Offline Pottsy

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Re: Myhealth opt out Oct 15th deadline for automatic registration.
« Reply #31 on: July 20, 2018, 03:15:50 PM »
I recently spent some time visiting my father in a private hospital in Adelaide before his passing, he became increasingly confused about treatments etc and at one stage refused to sign some papers. I checked with the nursing staff and they simply were admission papers and authorisation for information to be shared amongst treating specialists and the neighbouring public hospital who held valuable information from earlier treatments and hospital stays. I then got mum to sign as dads PA.
How much easier if all the various specialists and doctors have access to ALL your health records.

I will not be opting out, but it is a decision each individual will make based on their understanding of the system and their individual health situation.
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Re: Myhealth opt out Oct 15th deadline for automatic registration.
« Reply #32 on: July 20, 2018, 03:30:54 PM »
Quote from: Pottsy
How much easier if all the various specialists and doctors have access to ALL your health records.
Having spent several months in hospital after my accident, and the family having to chase records from a spinal fusion I had when i was 15, yes it would be much easier if Dr's and specialists had acccess...

The issue is - who else will have access to your info - you dont trust Gov co to keep it a secret?

The more your info is out there the easier it is for crime and things like identity theft etc. Foil hat - possibly but when the bloke in charge says he doesnt trust it... what do you do?
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Offline glenm64

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Re: Myhealth opt out Oct 15th deadline for automatic registration.
« Reply #33 on: July 20, 2018, 04:37:52 PM »
Another big problem I see is, it needs to be the most secure system you can build, but it needs to be accessed by myriads of people. Its like having  a credit card with thousands of people knowing the PIN.
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Offline glenm64

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Re: Myhealth opt out Oct 15th deadline for automatic registration.
« Reply #34 on: July 20, 2018, 10:10:20 PM »
https://uk.reuters.com/article/uk-singapore-cyberattack/cyberattack-on-singapore-health-database-steals-details-of-1-5-million-including-pm-idUKKBN1KA14B

Cheers Glen

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Offline Pottsy

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Re: Myhealth opt out Oct 15th deadline for automatic registration.
« Reply #35 on: July 21, 2018, 09:45:57 AM »
https://uk.reuters.com/article/uk-singapore-cyberattack/cyberattack-on-singapore-health-database-steals-details-of-1-5-million-including-pm-idUKKBN1KA14B

Cheers Glen
Heard that on the radio this morning and thought to myself that will make Myswag. Still won't be opting out.
Cheers
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Offline glenm64

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Re: Myhealth opt out Oct 15th deadline for automatic registration.
« Reply #36 on: July 21, 2018, 10:00:06 AM »


Still won't be opting out.
Cheers
Pottsy

Good for you having made your mind up on your personal choice.
Thats the whole point. Its called informed consent. No different to any medical treatment offered. You are made aware of all the benefits and all the risks, you weigh up whether or not you choose to accept or refuse the treatment being offered.
Unfortunately there is no informed consent with the whole MHR.
No one should telling people not to participate in MHR, just be aware and make your own decision.


Cheers Glen

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Offline tryagain

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Re: Myhealth opt out Oct 15th deadline for automatic registration.
« Reply #37 on: July 21, 2018, 10:49:36 AM »
Without looking into it too much, it seems like it has its positives and negatives, the more stuff you have/want to hide, the more opting out is beneficial, the more you want convenience and best health care outcomes, staying in is more beneficial.

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Offline The punter

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Re: Myhealth opt out Oct 15th deadline for automatic registration.
« Reply #39 on: July 23, 2018, 12:28:04 PM »
Just like metadata, which previously required a warrant signed by a judge and with supporting evidence, access controls will become looser over time as the practice becomes normalised.
Per here, http://www.abc.net.au/news/2016-01-18/government-releases-list-of-agencies-applying-to-access-metadata/7095836 , do you think there's any reason Bankstown City Council, the National Measurement Institute and Greyhound Racing Victoria for example should have access to information that used to only be provided as part of the judicial process?

The same thing will happen to health records, private industry will be all over it.
http://theconversation.com/healthengine-may-be-in-breach-of-privacy-law-in-sharing-patient-data-98942

Opt out, do it now.
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Offline Kangaron

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Re: Myhealth opt out Oct 15th deadline for automatic registration.
« Reply #40 on: July 23, 2018, 12:57:00 PM »
My mother recently passed away, she had opted to donate her body to the Melbourne Uni body donor program, via the Coroners court.
The only other contact has been the Registrar for Births, Deaths and Marriages.
For the past 2 weeks both my wife and I have been bombarded with emails and text messages from funeral homes, insurance companies and the banking sector.
If I turn Ad Block Plus off on my PC, the above targeted ads appear everywhere I visit on the internet.
I think opting out won't make any difference, it is too late.

Offline glenm64

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Re: Myhealth opt out Oct 15th deadline for automatic registration.
« Reply #41 on: July 23, 2018, 01:13:32 PM »
The legal definition of a pre existing medical condition is that you have shown signs or symptoms, it doent have to be diagnosed.
Had a test 5 years ago because of a doctors concerns you may have had a particular medical complaint? Health insurers who now have access to your records will now be claiming you have a pre existing condition.
Reckon Im wrong?
Lets see in 5 years what is happening. Id put a carton on it.



Cheers Glen

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Offline Beachman

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Re: Myhealth opt out Oct 15th deadline for automatic registration.
« Reply #42 on: July 23, 2018, 02:12:44 PM »
For me I think it’s a good idea and I don’t have anything in my medical history which concerns me. Also agree Facebook & Google know more about me than what’s in my medical history. Years ago with my elderly parents we were constantly trying to make sure we bought the correct relevant  medical reports when seeing new specialists, so this way it’s all online and saves drama.

In regards to Life/Health insurance getting access upfront saves everyone a difficult conversation at  claim time in regards to what you consider a Pre-existing condition and the Dr’s/Insurance company interpretation of that particular condition. So knowing upfront that a medical issues is going to cause issues would give you the opportunity to shop around  for a better deal or stops giving false hope that your covered when your actually not.

I work in the Life insurance industry and when you apply for insurance you sign a form giving the company permission to obtain your medical records away. So they can either write for this report upfront or when a claim is made. Either way they will get your medical history.
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Offline corndog

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Re: Myhealth opt out Oct 15th deadline for automatic registration.
« Reply #43 on: July 23, 2018, 02:17:31 PM »
Why make it so easy for some to screw you over. Opt out and make them work for their money. They get paid well for screwing.

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Re: Myhealth opt out Oct 15th deadline for automatic registration.
« Reply #44 on: July 23, 2018, 03:26:44 PM »
Quote from: glenm64
Lets see in 5 years what is happening. Id put a carton on it.
and I think thats teh sumbling block... not today, but what some arse**** changes the rules in 2-3 yrs time..

but as few have said (inc ron) its probably too late.

who was it the other week had a companyu offer to sell him x00,000 email address' so he could spam em... :(
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Offline Pete79

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Myhealth opt out Oct 15th deadline for automatic registration.
« Reply #45 on: July 24, 2018, 09:05:59 AM »
Myhealth is off to a flying start...


My Health Record agency adds 'reputation', 'public interest' cancellation options to app contracts.

My Health Record is scrambling to put tough new restrictions on mobile phone apps that use its sensitive patient data, including an option to cancel if the companies damage the system's reputation.
Companies Telstra, HealthEngine, Tyde and Healthi already have access to My Health Record information such as Medicare records, test results, scans and prescriptions, for their app users to view on mobile phones.

The Australian Digital Health Agency (DHA), which is facing a crisis of confidence over its ability to safely store sensitive health data in My Health Record, has sent out a heavily amended agreement to the four app companies.
The new agreement, obtained by the ABC, will mean that companies' contracts would be terminated if they damage My Health Record's reputation and will give the chief executive Tim Kelsey a five-day cancellation option if he "forms the view that this agreement … may be contrary to the public interest".
Data privacy law expert Katharine Kemp said even the public interest cancellation clause did not go far enough.

"I think it's a good idea to have a public interest ground for termination, but I'm not sure why you'd allow a health app to operate for five extra business days if you'd formed the view this was contrary to the public interest," she said.
There are also much tighter clauses on how the companies report data breaches and collect information and consent from app users.
"Especially in the case of our sensitive health information, the Government must ensure that health apps use the highest standards of consent," Dr Kemp said.
"This agreement does not do that."

http://abc.net.au/news/2018-07-24/digital-health-agency-changes-my-health-record-app-contracts/10026644?pfmredir=sm
« Last Edit: July 24, 2018, 11:01:47 AM by Pete79 »

Offline glenm64

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Re: Myhealth opt out Oct 15th deadline for automatic registration.
« Reply #46 on: July 24, 2018, 09:22:59 AM »
 Telstra, HealthEngine, Tyde and Healthi already have access to My Health Record ??

Call me cynical, but we are not being told how many companies have (or will have) access to the MHR. This will be a revenue stream for a cash strapped government that is selling access to it, to eveyone it can, to milk it dry. Why the hell do you need to get a 3rd party app, when their your records, that you should be able to access for free.
"HealthEngine app(owned by Telstra and Channel 7) has funnelled hundreds of users' private medical information to law firms seeking clients for personal injury claims"
 http://www.abc.net.au/news/2018-06-25/healthengine-sharing-patients-information-with-lawyers/9894114

I have as much confidence in this as I would a catholic priest babysitting my kids.

Edit: How do these free mobile phone health apps make money out from their access to MHR?
Their not charities, so after spending money developing their apps, they have to be getting some form of revenue from the data.
« Last Edit: July 24, 2018, 10:56:54 AM by glenm64 »
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Re: Myhealth opt out Oct 15th deadline for automatic registration.
« Reply #47 on: July 24, 2018, 09:24:51 AM »
Quote from: glenm64
I have as much confidence in this as I would a catholic priest babysitting my kids.
:cup: :cup: :cup: :cup: :cup: :cup: :cup: :cup: :cup: nobody in their right mind would do that :cup: :cup: :cup: :cup: :cup: :cup: :cup: :cup: :cup:

Good work Telstra... one for the people.
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Offline Pete79

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Re: Myhealth opt out Oct 15th deadline for automatic registration.
« Reply #48 on: July 31, 2018, 10:07:46 PM »
“Federal Health Minister Greg Hunt has bowed to pressure and agreed to tear up the controversial legislation behind the My Health Record to protect patients from having their medical records accessed by police.

Following crisis talks with the head of the Australian Medical Association in Melbourne on Tuesday night, Mr Hunt confimed in a statement that the My Health Record Act will be redrafted.

"The amendment will ensure no record can be released to police or government agencies, for any purpose, without a court order," the statement said.

"The Digital Health Agency’s policy is clear and categorical - no documents have been released in more than six years and no documents will be released without a court order. This will be enshrined in legislation."

Mr Hunt said the reform would "remove any ambiguity on this matter".

He added that the legislation would also be amended to ensure that if any Australian wished to cancel their record, they could do so permanently, with their record deleted from the system.

"The government will also work with medical leaders on additional communications to the public about the benefits and purpose of the My Health Record, so they can make an informed choice," Mr Hunt said.

AMA President Tony Bartone told Fairfax Media that he had enjoyed a "frank and constructive discussion" with Mr Hunt and welcomed the Minister's decision, which he said would allow patients to make "an informed choice".

"In addition, we’ve also impressed upon the Minister that there’s a need to have some clear air, to ensure that the community has time to fully understand what is a My Health Record and what is entailed in the opt out process," Dr Bartone said.

He said the Minister had agreed to consider extending the opt-out period by a month from the October 15 deadline, to allow Australians to become informed of their options.”

https://www.smh.com.au/politics/federal/health-minister-backs-down-on-my-health-record-20180731-p4zuqo.html

Offline Fizzie

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Re: Myhealth opt out Oct 15th deadline for automatic registration.
« Reply #49 on: August 01, 2018, 08:51:07 AM »
“Federal Health Minister Greg Hunt has bowed to pressure and agreed to tear up the controversial legislation behind the My Health Record to protect patients from having their medical records accessed by police.

Following crisis talks with the head of the Australian Medical Association in Melbourne on Tuesday night, Mr Hunt confimed in a statement that the My Health Record Act will be redrafted.

"The amendment will ensure no record can be released to police or government agencies, for any purpose, without a court order," the statement said.

& not be released to any private organisation, under any circumstances, ever.

Quote
to ensure that the community has time to fully understand what is a My Health Record and what is entailed in the opt out process," Dr Bartone said.

He said the Minister had agreed to consider extending the opt-out period by a month from the October 15 deadline, to allow Australians to become informed of their options.”

In that case, put the whole thing back for 12 months so you can actually explain the "benefits" of joining, then allow people to opt-in, if they choose to do so
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