Post by: glenm64 on July 17, 2018, 08:08:07 PM
Heres the opt out link.
https://www.myhealthrecord.gov.au/for-you-your-family/opt-out-my-health-record
Cheers Glen
Post by: Poita on July 18, 2018, 05:51:55 PM
Post by: Troopy_03 on July 18, 2018, 07:09:14 PM
I think it's a brilliant idea. It's so annoying not knowing my health history in detail and having to re-explain stuff or remember when I last had a tetanus shot etc every time I go to a different doctor!
And it'll be so handy in the future, when your company has hired a "consultant", and somehow they decided that you may not be a suitable candidate for promotion, because you "appear" to have high stress levels...
Post by: plusnq on July 18, 2018, 07:31:27 PM
Post by: rags on July 18, 2018, 08:08:31 PM
The only advantage I can see is for people who change GP’s regularly. For them there is a convenience factor although most GP’s will send a history to the new GP if asked. Otherwise all the issues regarding privacy and security of your personal information are a pretty major downside.
Now I'm no doctor but I think the advantage for the swagger being registered, who is on the road let say out at Birdesville, on Warfarin, has a medical episode, incoherent, flying doctor medi- vacs them out for urgent surgery. I think the swagger would be glad that the Drs had quick access to their medical records, quickly realising that the dr needs to give them a clotting drug before putting the knife in, otherwise needing to delay surgery or potentially causing dangerous bleeding as a result of the warfarin.
It amazes me that some people are willing to give Apple their thumb print or eye retina access, Facebook when they last had a sh#t, the my-gov their personal details for Dr fee rebate, Centrelink payments etc but are up in arms over giving medical practitioners assess to their medical file which may one day save their life.
Post by: achjimmy on July 18, 2018, 08:11:41 PM
And it'll be so handy in the future, when your company has hired a "consultant", and somehow they decided that you may not be a suitable candidate for promotion, because you "appear" to have high stress levels...
And how will they get that ?
It amazes me that some people are willing to give Apple their thumb print or eye retina access, Facebook when they last had a sh#t, the my-gov their personal details for Dr fee rebate, Centrelink payments etc but are up in arms over giving medical practitioners assess to their medical file which may one day save their life.
:cheers:
Post by: achjimmy on July 18, 2018, 08:15:22 PM
Now I'm no doctor but I think the advantage for the swagger being registered, who is on the road let say out at Birdesville, on Warfarin, has a medical episode, incoherent, flying doctor medi- vacs them out for urgent surgery. I think the swagger would be glad that the Drs had quick access to their medical records, quickly realising that the dr needs to give them a clotting drug before putting the knife in, otherwise needing to delay surgery or potentially causing dangerous bleeding as a result of the warfarin.
Yep I travel a lot for work and had the occasion to visit the odd interstate G.P. and this will be a god send . On a lesser case I ran out of some anti inflams I need for elbow recently and the only script was out of date. So went to local chemist and she looked me up and said as a regular with history no issues
Post by: plusnq on July 18, 2018, 09:13:51 PM
Now I'm no doctor but I think the advantage for the swagger being registered, who is on the road let say out at Birdesville, on Warfarin, has a medical episode, incoherent, flying doctor medi- vacs them out for urgent surgery. I think the swagger would be glad that the Drs had quick access to their medical records, quickly realising that the dr needs to give them a clotting drug before putting the knife in, otherwise needing to delay surgery or potentially causing dangerous bleeding as a result of the warfarin.
It amazes me that some people are willing to give Apple their thumb print or eye retina access, Facebook when they last had a sh#t, the my-gov their personal details for Dr fee rebate, Centrelink payments etc but are up in arms over giving medical practitioners assess to their medical file which may one day save their life.
The quick and timely access is an issue for remote work. On a recent refresh of my Remote Area First Aid course it was r3commended that if you travel alone that the relevant info be kept in your wallet or purse. This is because Police and Ambulance will look for any info if possible. And if in a group, that you gave each vehicle in the group a copy of your info in a sealed envelope for emergencies. There are issues with any database being current and able to be relied upon for information.
I’m not here to convince anyone. Here are the cases for
https://theconversation.com/my-health-record-the-case-for-opting-in-99850 (https://theconversation.com/my-health-record-the-case-for-opting-in-99850)
And against
http://theconversation.com/my-health-record-the-case-for-opting-out-99302 (http://theconversation.com/my-health-record-the-case-for-opting-out-99302)
Cheers
Post by: rockrat on July 18, 2018, 09:15:57 PM
The only advantage I can see is for people who change GP’s regularly. For them there is a convenience factor although most GP’s will send a history to the new GP if asked. Otherwise all the issues regarding privacy and security of your personal information are a pretty major downside.I’ve moved around quite a bit and probably haven’t been to the same GP more than twice in over 10 years. So I think this is a pretty good idea.
Post by: RedProw on July 18, 2018, 09:20:09 PM
Post by: glenm64 on July 18, 2018, 11:05:52 PM
https://www.smh.com.au/technology/government-left-red-faced-by-health-privacy-commissioner-s-website-bungle-20180717-p4zs1t.html
Thats the least of my concerns.
Corporations will be scheming like you've never seen to get their grubby hands into it.
Wonder how many retired pollies end up on the boards of these corporations once they water down our privacy under the guise of national security, research or the myriad of other back doors to allow them access?
We are a very laid back as a nation, and pollies know it, taking advantage of us every chance they get.
When Im 70, of no fixed abode, diagnosed with 3 different serious medical conditions, then maybe I might consider it.
Probably not.
Cheers Glen
Post by: Bird on July 19, 2018, 08:48:53 AM
Quote from: rags
It amazes me that some people are willing to give Apple their thumb print or eye retina access, Facebook when they last had a sh#t, the my-gov their personal details for Dr fee rebate, Centrelink payments etc but are up in arms over giving medical practitioners assess to their medical file which may one day save their life.I think Apples or even stalkerbook's security is about a billion times better than anything our Shit Gov would ever dream of paying for....
Post by: Rumpig on July 19, 2018, 09:05:31 AM
Post by: Troopy_03 on July 19, 2018, 05:22:46 PM
And how will they get that ?
:cheers:
The same way that any other "super secure" private data ends up being accessed eventually... If there is any way someone can make a buck out of it, it will be done..
Post by: Cruiser 105Tvan on July 19, 2018, 05:46:04 PM
The same way that any other "super secure" private data ends up being accessed eventually... If there is any way someone can make a buck out of it, it will be done..Anything connected to the internet can be accessed, just ask Bird.
Post by: Pete79 on July 19, 2018, 05:57:52 PM
Unfortunately it’s the 3rd party stuff that’s the concern.
I give the insurance industry about 3-6 months until they’ve got open access to everything through some guise of “medical research” or what ever loop hole gets left open for them.
Shame really, we can just add this one to the long list of good ideas poorly executed.... :(
Post by: Bird on July 19, 2018, 06:27:11 PM
Quote from: Pete79
we can just add this one to the long list of good ideas poorly executed.... :(Nail on the head.
Post by: Pottsy on July 19, 2018, 07:37:14 PM
Nail on the head.Nail on the head, you need that in your medical records cause they're normally on your fingers and toes! ;D
Post by: OldPaj on July 19, 2018, 10:23:17 PM
Post by: JusyApples on July 20, 2018, 12:04:24 PM
Post by: Cruiser 105Tvan on July 20, 2018, 12:32:59 PM
Someone will take it, and you won't know till it's gone. Too late then.
Post by: Pete79 on July 20, 2018, 01:34:51 PM
Doctors have been using the system for at least the last 5years. The login is on the myGov website, the same place you login in for Centrelink and ATO so what's the difference. Your data can be stolen from anywhere, including this forum so I don't see why people are so caught up on their security when it's already out there for someone to steal.It’s not the data being stolen that’s the issue. It’s the data being compiled and sold that’s the problem.
If I can give a personal example.
As a 2nd year apprentice many moons ago, there was a week when the weather was perfect for fishing on the reef. So I happened to develop a bit of a sore back for a few days and couldn’t make it into work.
On my return the company put me on lite duties and I had to attend a couple of sessions of Physio to get fit for work again.
Today I’m sure there’s a dusty old manila folder shoved down the back of a filing cabinet in a back room of a little country hospital with my injury report in it and no employer ever since that day has any knowledge of my “pre-existing back injury”.
Now if an apprentice working today decides to pull the same youthful prank they are completely screwed.
That “pre-existing back injury” will haunt them for life.
All of the other Cambridge Analytica companies out their today are primed and ready to start data mining their way through all of our medical records and willing to selling this data to anyone that wants to purchase it.....
Post by: Rumpig on July 20, 2018, 01:45:55 PM
It’s not the data being stolen that’s the issue. It’s the data being compiled and sold that’s the problem.i guess if you hadn’t of pretended to be injured it wouldn’t be a problem down the track....that’s the karma bus IMO.
If I can give a personal example.
As a 2nd year apprentice many moons ago, there was a week when the weather was perfect for fishing on the reef. So I happened to develop a bit of a sore back for a few days and couldn’t make it into work.
On my return the company put me on lite duties and I had to attend a couple of sessions of Physio to get fit for work again.
Today I’m sure there’s a dusty old manila folder shoved down the back of a filing cabinet in a back room of a little country hospital with my injury report in it and no employer ever since that day has any knowledge of my “pre-existing back injury”.
Now if an apprentice working today decides to pull the same youthful prank they are completely screwed.
That “pre-existing back injury” will haunt them for life.
All of the other Cambridge Analytica companies out their today are primed and ready to start data mining their way through all of our medical records and willing to selling this data to anyone that wants to purchase it.....
Post by: Pete79 on July 20, 2018, 01:47:50 PM
i guess if you hadn’t of pretended to be injured it wouldn’t be a problem down the track....that’s the karma bus IMO.Never had a sickie in your whole life aye.....??
The karma bus gets fibbers too you know.
Edit;
The boss would have never believed I had the flu for a whole week, it had to more serious then that and the fishing was bloody awesome.
Post by: Rumpig on July 20, 2018, 01:54:49 PM
Never had a sickie in your whole life aye.....??i actually used to ring my boss Sunday arvos and tell him I was at Fishos drinking with mates, so wouldn’t be in tomorrow....no need to lie to get the day off. I did a 3 year apprenticeship and have been self employed ever since...so no I never did what you asked as such.
The karma bus gets fibbers too you know.
Edit;
The boss would have never believed I had the flu for a whole week, it had to more serious then that and the fishing was bloody awesome.
Post by: JusyApples on July 20, 2018, 01:58:30 PM
It’s not the data being stolen that’s the issue. It’s the data being compiled and sold that’s the problem.
If I can give a personal example.
As a 2nd year apprentice many moons ago, there was a week when the weather was perfect for fishing on the reef. So I happened to develop a bit of a sore back for a few days and couldn’t make it into work.
On my return the company put me on lite duties and I had to attend a couple of sessions of Physio to get fit for work again.
Today I’m sure there’s a dusty old manila folder shoved down the back of a filing cabinet in a back room of a little country hospital with my injury report in it and no employer ever since that day has any knowledge of my “pre-existing back injury”.
Now if an apprentice working today decides to pull the same youthful prank they are completely screwed.
That “pre-existing back injury” will haunt them for life.
All of the other Cambridge Analytica companies out their today are primed and ready to start data mining their way through all of our medical records and willing to selling this data to anyone that wants to purchase it.....
Have a look at legislation My Health Records Act 2012, no one can sell the info.
Your health records are private. No one can access it, even police can't get it medical records from victims without signed permission.
Doctors are already using online medical record.
https://www.myhealthrecord.gov.au/sites/g/files/net4206/f/hd208_cyberprivacy_tips_20180410.pdf?v=1523931275 (https://www.myhealthrecord.gov.au/sites/g/files/net4206/f/hd208_cyberprivacy_tips_20180410.pdf?v=1523931275)
Post by: Pete79 on July 20, 2018, 02:17:10 PM
Have a look at legislation My Health Records Act 2012, no one can sell the info.
Your health records are private. No one can access it, even police can't get it medical records from victims without signed permission.
Doctors are already using online medical record.
https://www.myhealthrecord.gov.au/sites/g/files/net4206/f/hd208_cyberprivacy_tips_20180410.pdf?v=1523931275 (https://www.myhealthrecord.gov.au/sites/g/files/net4206/f/hd208_cyberprivacy_tips_20180410.pdf?v=1523931275)
That's a nice glossy government document with half of the real details missing.
Our data is most definitely up for sale, just need to word your submission correctly and it's all yours...
Bold bits added by me;
"From as early as 2020 the medical information of Australians will made available to third parties, including data that identifies patients, unless they take steps to stop it being shared, according to the federal government’s new secondary data use rules.
Releasing the Framework to guide the secondary use of data in My Health Record system, Health Minister Greg Hunt confirmed in a statement that individuals’ highly confidential information will be made available for public health and research purposes unless they opt-out.
The framework, which was developed in collaboration with consumers, clinicians, medical researchers, industry experts, privacy advocates and the Office of the Australian Information Commissioner, also aims to ensure people’s privacy and the security of the data, the minister said.
“The My Health Record system will help save and protect lives and is supported by healthcare consumers, doctors and the medical community across Australia. It is subject to some of the strongest legislation in the world to prevent unauthorised use,” Hunt said.
All Australians will have a My Health Record in 2018 unless they opt out of the system during a three-month period from 16 July to 15 October 2018. Those who are handed a MHR will automatically be signed up for the secondary use of their data and can opt out by clicking on a ‘Withdraw Participation’ button.
If they don’t opt out, according to the framework, consumers can limit access as “any data or document that they have classified (using consumer controls) as being ‘Restricted Access’ or that they have removed will not be retrieved for secondary use purposes”. Data in a cancelled record will not be accessible.
Information could start flowing out of the MHR to third parties in 2020.
The MHR online repository is designed to collect and share the health information of Australians – such as GP health summaries, hospital discharge reports, imaging and pathology results, and details of drugs prescribed – between healthcare providers to support patient care.
The secondary use of the data is far more controversial, with a number of submissions to the public consultation process for the framework calling for the system to be opt-in.
In addition to its use in medical research, the minister said the information will allow improved forecasting of health trends, and inform planning and policy development.
He said the data “cannot be used for commercial and non-health-related purposes, including direct marketing to consumers, insurance assessments, and eligibility for welfare benefits”. Insurance companies won’t be able to access the information, according to the new rules.
However, the framework says companies can apply to have the data door opened to them if they can show it is in the public interest.
“There is a need to balance support for the use of the data for beneficial research and public health purposes against the policy of not using the data for solely commercial purposes,” it says.
“Commercial organisations may propose uses that could be approved so long as it can be demonstrated that the use is consistent with ‘research and public health purposes’ and is likely to generate public health benefits and/or be in the public interest.”
The framework also says identified data is up for grabs.
“For applications involving identified data, subject to the provisions of the My Health Records Act 2012 and the Privacy Act 1988, the Board will require ethics approval to be obtained by the AIHW Ethics Committee before data can be accessed or released.”
For those applying for access to de-identified data, ethics approval may need to be obtained. The risk of the data being re-identified and the potential harm or embarrassment it can cause to individuals is acknowledged within the framework, which says those considerations need to be balanced with the greater good.
“There is a need to ensure that individuals’ privacy is protected and that de-identification methods render the risk of re-identification as very low (having regard to the relevant release context). There is also a need to balance maximising the benefits of using the data with the risk of breaching an individual’s privacy or causing harm to individuals.”
The Board can permit the linkage of MHR system data with other data sources if the project is deemed to be of public benefit.
Hunt said “the protection of patient information and privacy is critical and we have strong safeguards in place to protect health data in Australia”, including the risk of jail for those found “doing the wrong thing with patient information”.
Any Australian-based entity – other than insurance companies – can apply to access the data. International organisations can apply if they are working in collaboration with Australian applicants on a proposed project, the data usage will generate public health benefits for Australians, and the MHR data will be stored in a facility within Australia.
The Australian Institute of Health and Welfare will be the data custodian for the purposes of the framework, and a Governance Board comprised of representatives from the AIHW, the Australian Digital Health Agency and independent experts in population health, research, health services delivery, technology, data science, data governance and privacy, and consumer advocacy will be appointed. The ADHA, as the system operator, will be responsible for preparing and providing the data."
As per my earlier post, I give insurance companies months before they've got access to everything (through 3rd parties and the guise of medical research).
And employers will soon enough have no problems working with Cambridge Analytica style companies that have applied for access for "the greater good" and purchase the medical records of potential employees.
Once again, the data doesn't need to be stolen when it is openly offered up for collection......
Post by: Bird on July 20, 2018, 02:26:17 PM
Quote from: Pete79
That's a nice glossy government document with half of the real details missing
Only thing you need to remember is they will go with the cheapest, least recommended solution that will be obsolete by the time its implemented and bugs ironed out so they start again.
And how do you tell when a politician is lying?
His mouth is open.
Post by: Pete79 on July 20, 2018, 02:28:50 PM
Not much more than this needs to be said really...
"The framework will be reviewed two years after the initial dataset is released, with the possibility that wider uses of the information will be identified, including the provision of MHR data to insurance agencies".
Post by: JusyApples on July 20, 2018, 02:58:52 PM
Just realized I didn't copy the last line of that article.But you still didn't read legislation did you ???
Not much more than this needs to be said really...
"The framework will be reviewed two years after the initial dataset is released, with the possibility that wider uses of the information will be identified, including the provision of MHR data to insurance agencies".
Post by: Pete79 on July 20, 2018, 03:14:32 PM
But you still didn't read legislation did you ???Nope.
Just opting out was much quicker and easier. ;)
I’m guessing the myhealth legislation has lots of rules and laws just like the anti discrimination, human rights, environmental protection or even the latest “Banking Executive Accountability Regime” legislation has. And all of those are going swimmingly these days aren’t they.... ;D
Post by: Pottsy on July 20, 2018, 03:15:50 PM
How much easier if all the various specialists and doctors have access to ALL your health records.
I will not be opting out, but it is a decision each individual will make based on their understanding of the system and their individual health situation.
Post by: Bird on July 20, 2018, 03:30:54 PM
Quote from: Pottsy
How much easier if all the various specialists and doctors have access to ALL your health records.Having spent several months in hospital after my accident, and the family having to chase records from a spinal fusion I had when i was 15, yes it would be much easier if Dr's and specialists had acccess...
The issue is - who else will have access to your info - you dont trust Gov co to keep it a secret?
The more your info is out there the easier it is for crime and things like identity theft etc. Foil hat - possibly but when the bloke in charge says he doesnt trust it... what do you do?
Post by: glenm64 on July 20, 2018, 04:37:52 PM
Post by: glenm64 on July 20, 2018, 10:10:20 PM
Cheers Glen
Post by: Pottsy on July 21, 2018, 09:45:57 AM
https://uk.reuters.com/article/uk-singapore-cyberattack/cyberattack-on-singapore-health-database-steals-details-of-1-5-million-including-pm-idUKKBN1KA14BHeard that on the radio this morning and thought to myself that will make Myswag. Still won't be opting out.
Cheers Glen
Cheers
Pottsy
Post by: glenm64 on July 21, 2018, 10:00:06 AM
Still won't be opting out.
Cheers
Pottsy
Good for you having made your mind up on your personal choice.
Thats the whole point. Its called informed consent. No different to any medical treatment offered. You are made aware of all the benefits and all the risks, you weigh up whether or not you choose to accept or refuse the treatment being offered.
Unfortunately there is no informed consent with the whole MHR.
No one should telling people not to participate in MHR, just be aware and make your own decision.
Cheers Glen
Post by: tryagain on July 21, 2018, 10:49:36 AM
Post by: Bird on July 23, 2018, 12:20:42 PM
Post by: The punter on July 23, 2018, 12:28:04 PM
Per here, http://www.abc.net.au/news/2016-01-18/government-releases-list-of-agencies-applying-to-access-metadata/7095836 (http://www.abc.net.au/news/2016-01-18/government-releases-list-of-agencies-applying-to-access-metadata/7095836) , do you think there's any reason Bankstown City Council, the National Measurement Institute and Greyhound Racing Victoria for example should have access to information that used to only be provided as part of the judicial process?
The same thing will happen to health records, private industry will be all over it.
http://theconversation.com/healthengine-may-be-in-breach-of-privacy-law-in-sharing-patient-data-98942 (http://theconversation.com/healthengine-may-be-in-breach-of-privacy-law-in-sharing-patient-data-98942)
Opt out, do it now.
Post by: Kangaron on July 23, 2018, 12:57:00 PM
The only other contact has been the Registrar for Births, Deaths and Marriages.
For the past 2 weeks both my wife and I have been bombarded with emails and text messages from funeral homes, insurance companies and the banking sector.
If I turn Ad Block Plus off on my PC, the above targeted ads appear everywhere I visit on the internet.
I think opting out won't make any difference, it is too late.
Post by: glenm64 on July 23, 2018, 01:13:32 PM
Had a test 5 years ago because of a doctors concerns you may have had a particular medical complaint? Health insurers who now have access to your records will now be claiming you have a pre existing condition.
Reckon Im wrong?
Lets see in 5 years what is happening. Id put a carton on it.
Cheers Glen
Post by: Beachman on July 23, 2018, 02:12:44 PM
In regards to Life/Health insurance getting access upfront saves everyone a difficult conversation at claim time in regards to what you consider a Pre-existing condition and the Dr’s/Insurance company interpretation of that particular condition. So knowing upfront that a medical issues is going to cause issues would give you the opportunity to shop around for a better deal or stops giving false hope that your covered when your actually not.
I work in the Life insurance industry and when you apply for insurance you sign a form giving the company permission to obtain your medical records away. So they can either write for this report upfront or when a claim is made. Either way they will get your medical history.
Post by: corndog on July 23, 2018, 02:17:31 PM
Post by: Bird on July 23, 2018, 03:26:44 PM
Quote from: glenm64
Lets see in 5 years what is happening. Id put a carton on it.and I think thats teh sumbling block... not today, but what some arse**** changes the rules in 2-3 yrs time..
but as few have said (inc ron) its probably too late.
who was it the other week had a companyu offer to sell him x00,000 email address' so he could spam em... :(
Post by: Pete79 on July 24, 2018, 09:05:59 AM
(http://i.imgur.com/gRWR0d4.gif)
My Health Record agency adds 'reputation', 'public interest' cancellation options to app contracts.
My Health Record is scrambling to put tough new restrictions on mobile phone apps that use its sensitive patient data, including an option to cancel if the companies damage the system's reputation.
Companies Telstra, HealthEngine, Tyde and Healthi already have access to My Health Record information such as Medicare records, test results, scans and prescriptions, for their app users to view on mobile phones.
The Australian Digital Health Agency (DHA), which is facing a crisis of confidence over its ability to safely store sensitive health data in My Health Record, has sent out a heavily amended agreement to the four app companies.
The new agreement, obtained by the ABC, will mean that companies' contracts would be terminated if they damage My Health Record's reputation and will give the chief executive Tim Kelsey a five-day cancellation option if he "forms the view that this agreement … may be contrary to the public interest".
Data privacy law expert Katharine Kemp said even the public interest cancellation clause did not go far enough.
"I think it's a good idea to have a public interest ground for termination, but I'm not sure why you'd allow a health app to operate for five extra business days if you'd formed the view this was contrary to the public interest," she said.
There are also much tighter clauses on how the companies report data breaches and collect information and consent from app users.
"Especially in the case of our sensitive health information, the Government must ensure that health apps use the highest standards of consent," Dr Kemp said.
"This agreement does not do that."
http://abc.net.au/news/2018-07-24/digital-health-agency-changes-my-health-record-app-contracts/10026644?pfmredir=sm (http://abc.net.au/news/2018-07-24/digital-health-agency-changes-my-health-record-app-contracts/10026644?pfmredir=sm)
Post by: glenm64 on July 24, 2018, 09:22:59 AM
Call me cynical, but we are not being told how many companies have (or will have) access to the MHR. This will be a revenue stream for a cash strapped government that is selling access to it, to eveyone it can, to milk it dry. Why the hell do you need to get a 3rd party app, when their your records, that you should be able to access for free.
"HealthEngine app(owned by Telstra and Channel 7) has funnelled hundreds of users' private medical information to law firms seeking clients for personal injury claims"
http://www.abc.net.au/news/2018-06-25/healthengine-sharing-patients-information-with-lawyers/9894114 (http://www.abc.net.au/news/2018-06-25/healthengine-sharing-patients-information-with-lawyers/9894114)
I have as much confidence in this as I would a catholic priest babysitting my kids.
Edit: How do these free mobile phone health apps make money out from their access to MHR?
Their not charities, so after spending money developing their apps, they have to be getting some form of revenue from the data.
Post by: Bird on July 24, 2018, 09:24:51 AM
Quote from: glenm64
I have as much confidence in this as I would a catholic priest babysitting my kids.:cup: :cup: :cup: :cup: :cup: :cup: :cup: :cup: :cup: nobody in their right mind would do that :cup: :cup: :cup: :cup: :cup: :cup: :cup: :cup: :cup:
Good work Telstra... one for the people.
Post by: Pete79 on July 31, 2018, 10:07:46 PM
Following crisis talks with the head of the Australian Medical Association in Melbourne on Tuesday night, Mr Hunt confimed in a statement that the My Health Record Act will be redrafted.
"The amendment will ensure no record can be released to police or government agencies, for any purpose, without a court order," the statement said.
"The Digital Health Agency’s policy is clear and categorical - no documents have been released in more than six years and no documents will be released without a court order. This will be enshrined in legislation."
Mr Hunt said the reform would "remove any ambiguity on this matter".
He added that the legislation would also be amended to ensure that if any Australian wished to cancel their record, they could do so permanently, with their record deleted from the system.
"The government will also work with medical leaders on additional communications to the public about the benefits and purpose of the My Health Record, so they can make an informed choice," Mr Hunt said.
AMA President Tony Bartone told Fairfax Media that he had enjoyed a "frank and constructive discussion" with Mr Hunt and welcomed the Minister's decision, which he said would allow patients to make "an informed choice".
"In addition, we’ve also impressed upon the Minister that there’s a need to have some clear air, to ensure that the community has time to fully understand what is a My Health Record and what is entailed in the opt out process," Dr Bartone said.
He said the Minister had agreed to consider extending the opt-out period by a month from the October 15 deadline, to allow Australians to become informed of their options.”
https://www.smh.com.au/politics/federal/health-minister-backs-down-on-my-health-record-20180731-p4zuqo.html (https://www.smh.com.au/politics/federal/health-minister-backs-down-on-my-health-record-20180731-p4zuqo.html)
Post by: Fizzie on August 01, 2018, 08:51:07 AM
“Federal Health Minister Greg Hunt has bowed to pressure and agreed to tear up the controversial legislation behind the My Health Record to protect patients from having their medical records accessed by police.
Following crisis talks with the head of the Australian Medical Association in Melbourne on Tuesday night, Mr Hunt confimed in a statement that the My Health Record Act will be redrafted.
"The amendment will ensure no record can be released to police or government agencies, for any purpose, without a court order," the statement said.
& not be released to any private organisation, under any circumstances, ever.
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to ensure that the community has time to fully understand what is a My Health Record and what is entailed in the opt out process," Dr Bartone said.
He said the Minister had agreed to consider extending the opt-out period by a month from the October 15 deadline, to allow Australians to become informed of their options.”
In that case, put the whole thing back for 12 months so you can actually explain the "benefits" of joining, then allow people to opt-in, if they choose to do so
Post by: trinityalyce on August 03, 2018, 07:48:45 AM
Also cannot stress the importance of finding a good GP and sticking with them - those ads about them being your “partner in life” (or whatever the slogan is) might be a tad cringe-worthy, but the good ones really are. Obviously not possible for full time travellers.
I love the IDEA of the MyHealthRecord but have some serious concerns about how data can or could be stored and used/accessed under current legislation. One day my views may change, if things are made rock solid, but for now I’m definitely opting out.
Post by: Patr80l on August 03, 2018, 05:48:20 PM
Allergies and medication would be useful. I can cope with figuring out the rest if the privacy cost is too high.
Insurance companies can already get all the information they want. If you don't consent to complete divulgence they just wont insure you.
Post by: alnjan on August 07, 2018, 10:12:59 PM
Here’s a hot tip - keep things documented yourself. If you’re on a bunch of meds make sure family know what they are and you have it written down. Same goes for medical conditions. Have really important things (serious medical conditions, essential medications, allergies) on an ID card in your wallet (or iPhones have a function for an emergency contact and this medical info to be available from the lock screen if you hit “Emergency” in the bottom corner). That way someone knows the bare minimum if you are found unconscious.
Also cannot stress the importance of finding a good GP and sticking with them - those ads about them being your “partner in life” (or whatever the slogan is) might be a tad cringe-worthy, but the good ones really are. Obviously not possible for full time travellers.
I love the IDEA of the MyHealthRecord but have some serious concerns about how data can or could be stored and used/accessed under current legislation. One day my views may change, if things are made rock solid, but for now I’m definitely opting out.
Not having a shot at you but I did have a little chuckle at your comment, "Have really important things (serious medical conditions, essential medications, allergies) on an ID card in your wallet". I wish our medical details fitted on an id card. My wife takes he several pages of medical details she keeps updating with each hospital visit.
As Patr80l says, Insurance companies can already get all the information they want. While the security of the MyHealth is an issue, I really do not see what the drama is. If only the Australia Card had been allowed.
Post by: Cruiser 105Tvan on August 07, 2018, 10:43:15 PM
I've been trying to avoid that for years.
Post by: Pete79 on August 08, 2018, 06:42:25 AM
You have to create a Mygov Acc. to be able to opt out.How do you get a tax return then???
I've been trying to avoid that for years.
Post by: trinityalyce on August 08, 2018, 07:31:21 AM
Not having a shot at you but I did have a little chuckle at your comment, "Have really important things (serious medical conditions, essential medications, allergies) on an ID card in your wallet". I wish our medical details fitted on an id card. My wife takes he several pages of medical details she keeps updating with each hospital visit.
My Dad was the same so I get it. However for a lot of the population the little relevant medical info would fit on a card would be valuable (my husband’s card would be blank, lol). Also, the card doesn’t need to be exhaustive, just the essential things someone needs to know in a life or death situation. Serious allergies, medications like insulin where not having them can have significant consequences, if you have a pacemaker or other serious condition, etc.
Post by: krisandkev on August 08, 2018, 07:56:43 AM
If only the Australia Card had been allowed.
Totally agree. Such stupid, sorry maybe a bit strong, such uninformed arguments back then. Kevin
Post by: Cruiser 105Tvan on August 08, 2018, 12:59:06 PM
How do you get a tax return then???I don't earn enough to have to pay tax.
The Invalid Pension has been taking care of things since 2010.
If I need to speak to someone I go to the nearest Centrelink Office.
You have to wait, almost as long sometimes, as on the phone. But at least you can sort stuff out.
Post by: Traveller on August 08, 2018, 01:22:01 PM
Here’s a hot tip - keep things documented yourself. If you’re on a bunch of meds make sure family know what they are and you have it written down. Same goes for medical conditions.
Our 4x4 club obtained a lot of 'Emergency Medical Information Books' that are about 100mm x 150mm when folded and contain pages where you write down your medical information. Your basic patient info, doctor's name and no., medicare no., medical insurance co., emergency contact, etc on the first page, then subsequent pages are for medications, medical conditions, patient history/service provider.
The booklets were printed as a fund raiser for Ambulance Vic and Rotary, and we could purchase them for a paltry fee. The club committee thought they were a good idea for people to carry on extended trips in case of a medical issue, where they would be kept in each vehicles glovebox and gathered if need be. Most of the club agreed and quite a few of us purchased some for home to keep on the fridge, the original purpose as they have a magnetic strip on the back. It is surprising how poor our memory is when in the middle of a crisis.
As with all these things though is that they have to be kept up to date.
Post by: Bird on August 08, 2018, 02:46:16 PM
Quote from: alnjan
If only the Australia Card had been allowed.didnt they rename it medicare card?
Post by: The punter on August 08, 2018, 05:22:15 PM
For me I think it’s a good idea and I don’t have anything in my medical history which concerns me. Also agree Facebook & Google know more about me than what’s in my medical history. Years ago with my elderly parents we were constantly trying to make sure we bought the correct relevant medical reports when seeing new specialists, so this way it’s all online and saves drama.
In regards to Life/Health insurance getting access upfront saves everyone a difficult conversation at claim time in regards to what you consider a Pre-existing condition and the Dr’s/Insurance company interpretation of that particular condition. So knowing upfront that a medical issues is going to cause issues would give you the opportunity to shop around for a better deal or stops giving false hope that your covered when your actually not.
I work in the Life insurance industry and when you apply for insurance you sign a form giving the company permission to obtain your medical records away. So they can either write for this report upfront or when a claim is made. Either way they will get your medical history.
The potential big issue is:
1: Currently you take out insurance and declare any existing condition. You have a diagnosis of a condition some time after, which may or may not end up being serious, this is your business and you don't have to tell anyone, it might be manageable, it might end up killing you, you are under no obligation to tell insurers. They took the risk of insuring you when you signed up and as long as you keep paying, they are obliged to continue insuring you. Fast forward 10 years and whatever the new condition was gets you and you need hospitalisation, you would have it covered.
2: Potential future, insurance company learns of this new condition and refuse to renew your policy. DOn't think it will happen? Of course it will.
Post by: alnjan on August 08, 2018, 07:37:23 PM
didnt they rename it medicare card?
Australia Card was to have all your info on it, not just medicare details.
Post by: Cruiser 105Tvan on August 08, 2018, 10:05:49 PM
The potential big issue is:
1: Currently you take out insurance and declare any existing condition. You have a diagnosis of a condition some time after, which may or may not end up being serious, this is your business and you don't have to tell anyone, it might be manageable, it might end up killing you, you are under no obligation to tell insurers. They took the risk of insuring you when you signed up and as long as you keep paying, they are obliged to continue insuring you. Fast forward 10 years and whatever the new condition was gets you and you need hospitalisation, you would have it covered.
2: Potential future, insurance company learns of this new condition and refuse to renew your policy. DOn't think it will happen? Of course it will.
No. 2 comes under the heading of 'failure to disclose'.
Post by: The punter on August 08, 2018, 10:31:35 PM
No. 2 comes under the heading of 'failure to disclose'.
Really, can you show me where a PDS says you have to advise an insurance company of a new condition unless it’s part of a claim?
Post by: gronk on August 08, 2018, 10:56:32 PM
The potential big issue is:
1: Currently you take out insurance and declare any existing condition. You have a diagnosis of a condition some time after, which may or may not end up being serious, this is your business and you don't have to tell anyone,
The only insurance I take out is travel insurance. Just recently I took a yearly one to cover for 3 trips in the next year. I think 1 year is the longest you can take it out, so any future medical conditions that happen would have to be declared in any future policies.
As for a life insurance policy, you would have to "carefully" read the PDS.
Post by: The punter on August 08, 2018, 11:24:02 PM
Post by: gronk on August 09, 2018, 06:46:09 AM
I’m talking about health insurance
I haven't declared any pre existing on my health insurance. As far as I recall, they don't ask you ?
Post by: Pete79 on August 09, 2018, 07:14:12 AM
I haven't declared any pre existing on my health insurance. As far as I recall, they don't ask you ?No they don’t.
They just happily take your money for years and years, until you make a claim.
Then they access your medical records (because you said they could when you signed the contract without reading the whole PDS) and they find any minor ailment that could be classed as pre-existing or a cause of the condition that you have now and they promptly deny your claim.
Post by: #jonesy on August 09, 2018, 07:53:15 AM
Currently stops someone joining and making a claim straight away. They have to serve a 12 month waiting period. Government will still be bye to legislate to protect the public and our health system. If they let insurers dump sick people it will put more pressure on the public system.
Post by: Troopy_03 on November 14, 2018, 05:48:00 AM
Post by: Pete79 on November 14, 2018, 04:47:18 PM
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The Senate voted to delay the deadline, and although the amendment needed to return to the House of Representatives to be formally adopted, Mr Hunt endorsed the extension on Twitter.
If you don't make a choice by the new cut-off date, you'll be among the estimated 17 million Australians for whom a record will be automatically created in the Government's online database of health information.
The opt-out period to date has been tumultuous. Since July, software analysts, unions and family violence charities have raised privacy and security concerns about the system, while health groups have talked about its clinical benefits.
In case you’re wondering, yes this whole thing is still a complete disaster with the government bumbling it’s way through a bunch of band-aid solutions and dishing out misinformation left, right and center....
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What's about to change?
After questions were raised about the ability of law enforcement agencies to access individual My Health Records without a court order, the Government introduced a bill making two key changes to the My Health Record legislation:
* Requiring law enforcement to have a court order to access My Health Record.
* If someone cancels their record, the Australian Digital Health Agency (ADHA) must "destroy" it, rather than holding it for 30 years after their death.
The amendment is being debated in the Senate today, but some experts still question when deleted is truly "deleted".
Without knowing the technical details of the system's software, Robert Merkel, a software engineering lecturer at Monash University, said it would be important to understand how the ADHA is implementing the "permanent" deletion of records.
He wants to know whether it means deleting them off the live system and ensuring backups are destroyed, or simply making it illegal to access a cancelled record.
The ADHA said that, after the legislation is passed, the record and any backups will be "permanently deleted" if someone cancels their record.
Individuals who have previously requested their records be cancelled will also have them permanently deleted.
What the Government says will change:
A Senate inquiry into the function of My Health Record made several recommendations aimed at improving the security of the system, as well as advocating the opt-out period be extended for 12 months.
Last week, Mr Hunt announced additional changes to the legislation:
* The penalties for improper use of My Health Record will be increased.
* To protect those in family violence situations, a person will not be allowed to be the authorised representative of a minor if they have restricted access to the child, or may pose a risk to the child, or a person associated with the child.
* Employers will be prohibited from asking for or using an employee's My Health Record information.
* Insurers will be excluded from accessing health information or deidentified health data for research.
* The ADHA won't be able to delegate functions of the system to any authority other than the Department of Health and the chief executive of Medicare.
Dr Bruce Baer Arnold, a law and health expert at the University of Canberra, said the changes were "a band-aid on the My Health Record train wreck".
"Many critics of My Health Record, such as myself, are passionate about public health," he wrote in an email.
"We perceive benefits from a … well designed and well maintained national electronic health system.
This week the Labor Party renewed calls to extend the opt-out period for 12 months until the new amendments are debated and passed. For now, the Senate agreed to a three-month extension.?
Will the medical privacy of teenagers still be undermined?
When a teenager turns 14, they must typically give consent for parents to access their Medicare information. Using My Health Record, parents can register their child and view and administer their information until the child turns 18, potentially undermining their medical privacy.
Once they turn 14, teenagers can take control of their record, but this does not occur automatically.
For now, the Government has announced it will conduct a review of the situation for 14- to 17-year-olds.
A lot of work has been done to ensure adolescents can access confidential health care, which the current scheme puts at risk, according to University of Melbourne associate professor Lena Sanci and member of the Australian Association for Adolescent Health.
Is the system design insecure?
The fundamental design of the My Health Record system raises concerns the Government has not yet addressed, according to Anna Johnston, director of Salinger Privacy.
As a centralised database, she argued it gives more people than ever before the ability to access a health record — but with clinical benefits, come risks.
"That garden variety risk will come from the 900,000 [people] who will eventually have access to the system as an authorised user, working somewhere within the healthcare system," Ms Johnston said.
While only healthcare professionals involved in a patient's care are meant to access a record, Ms Johnston suggested a step up in penalties, as proposed by the Health Minister, is unlikely to act as a deterrent.
Some healthcare workers have also pointed to a tradition of lax security in some Australian hospitals, which could, they argued, affect My Health Record.
Will Australians opt in to privacy controls?
Critics argue the nature of an opt-out system means that many Australians will have a My Health Record created, but never take control of it or even know it's there.
Currently, users of My Health Record can apply an access code to the record or certain documents, so only someone who has the code can get access.
But they must opt in to these privacy controls, and it appears relatively few do so.
As of Wednesday October 31, the ADHA said 18,288 record access codes and 3,991 limited document access codes had been created. More than 6 million Australians already have a record.
The Senate committee report recommended that record access codes should be applied to each My Health Record by default, and Ms Johnston said this would go some way towards addressing the issue.
The Government has not indicated it will take up the committee's suggestion.